So given my PFT's the doctor obviously wanted to know what I had been doing. The conversation went something like this. I started out with an 'ok I will tell you and I realize this is fringe and not at all main stream CF but.....recap of ca visit....recap of FNP visit and her thoughts on candida....recap on all test outcomes....recap on what measures I had taken and how I now felt.
He asked some questions. He was very interested in DramaMama's (Mandy's) insulin experience so I am going to get some follow up info on that. He said we only have just scratched the surface of knowing about the body etc etc he's glad to see me feeling so much better, yada yada, he's glad they didnt miss anything as far as what Dr. Moss checked (my dr is Stanford alum and knew Dr. Moss).
I told him that I realized this was not main stream and right now its an isolated finding and could be coincidental (from how I feel internally I can tell its not but I"m talking scientifically) or it could be from my one month of colistin but that I hoped two years from now to be sitting there still doing just as well and perhaps by then someone will have done some more lookign into it or it will get some additional interest from them based on my 'experiment'. He was overall very pleasant, very pleased, interested, wanted a bit of information additionally, but skeptical---of course. He said he liked to listen and was very interested and impressed.
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Nicole,
ReplyDeleteI am a 34 year old, 5'7" 255 lb overweight male. :)
I wanted to thank you for your detail, time and self-experimentation for the benefit of others (strangers) everywhere.
I have taken the time to read your Candida experience from February-April 2010. What landed me on your site was looking for validity of the spit-glass test and if it is a truly valid way to find out if you have Candida overgrowth.
I have an array of symptoms I have endured and tried to control and live with over several years and I have always attributed these symptoms to being overweight and out of shape, but recently I have begun to investigate much further (as I always do) the possibility of Candida overgrowth and I am worried about potential Candidiasis Septicemia (blood poisoning) eventually.
Everything I have (which if you'd like to discuss here or privately I'd be very happy to) could be attributed to many things, but I recently realized that a rash I get from time to time in my crotch/leg crease is a yeast infection. I have also not been able to thwart away what I believe is a yeast infection around my lips for about a year now. It will fade, but slightly red discoloration will remain and my true skin color beyond the lip line never really fully returns.
I also seem to break out with random red spots which I used to think were ring worm, but now I feel are not because this has been happening for over 10 years and goes away with washing and/or aloe or other lotions. Recently I read a "ring-worm look-alike article" online somewhere that said what I'm seeing could be Granuloma Annulare or Nummular Eczema, skin conditions said to be caused from an array of things namely stress/anxiety and/or other things.
However, due to my problems with yeast, as I've said above, and the fact that I can't keep it away or get rid of it around my lips + several other symptoms that match (particularly daily short-term/working memory loss and brain fog) I have come to wonder if the spots I am seeing are yeast/fungal related and/or Candida itself popping up in sporadic places like inner elbows, top of feet, center of chest, inner forearm, back top of legs/thighs due to it being in my blood stream. Namely my theory is this may be happening due to Leaky Gut Syndrome caused by Candida overgrowth that has gone unchecked for several years (10+).
I have a lot more symptoms than I've written about and I have read plenty of the same web sites I'm sure you have about Candida. In particular I am very curious about whether the medical community supports a lot of the naturalist/holistic claims and approaches about what to do about Candida overgrowth.
I have tried the unfiltered apple cider vinegar and felt great and was very "regular" BM-wise when I was taking it regularly, but I did not alter my diet either. Aloe Vera pills, acidophilus pills and yogurts seem to help digestion too and when I'm not doing any of these things constipation is a problem.
ReplyDeleteI had a bout with food poisoning (or so I thought it was) for 2 weeks about 9 months ago and it had me at the toilet 10 times a day for almost a week. I finally gave up and went to the doctor and was prescribed Bactrim DS, which is a double maximum dosage of that antibiotic. Ever since then I have not been able to shake the lip problem, but even before that I had just recently gotten it and was thinking it was chapped lips, but now I know (from my own observations) it is angular cheilitis, which is basically Candida on/around the lips.
Nystatin-triamcinolone-cream works eventually clearing up my lips, but the redish discoloration around my lip line remains and later the whole thing comes back again. This has lead me to notice that whenever my saliva gets on my lips from brushing teeth or licking lips the problem recurs, which to me would point to an overgrowth of Candida in my digestive system.
Again, I have much more to say/write symptoms-wise if you'd care to discuss or share emails. I'm about to call an internalist (thinking that'd be better at this point than a dermatologist) this week to go see about testing for candida overgrowth and I plan to use your blog information as a guide for what tests to run.
Nicole, I sympathize with your CF situation and I applaud you for your persistence to find answers and for your persistence to live life as best you can. The pursuit of answers and quality of life is what drives my life as well. I hope your site is helping more than just me and I appreciate it very much because its the first resource I've found that was not attached to selling a product. I came very close many times to buying that Threelac stuff, but since all the Candida symptoms were listed on their site along with the product I became too skeptical to purchase it.
I look forward to talking further. IM me as searcherrr on Yahoo IM or ThinkAbtIt on AIM. I use Yahoo IM more though.